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Improving end-of-life care at home by hearing the voices of bereaved caregivers with participatory action research

Projet lauréat de l’appel à projets de recherche sur les innovations 2023-2024. Suivi d’un projet de développement financé par le R1Q en 2022-2023.

Responsables

RRAPPL impliqué : RRAPPL Université McGill et RRAPPL de l’Université de Montréal – RRSPUM

Résumé

Caring for a dying person at home poses physical and emotional challenges to caregivers. They frequently experience burnout, which increases the risk of unwanted hospitalization and makes dying at home impossible. Palliative home care teams support caregivers but do so with variable accessibility and quality. To improve these services, we plan to ask bereaved caregivers what palliative care support they found especially helpful, and then share these findings with palliative home care services. Our team of caregiver research partners, palliative home care clinicians, and researchers aims to improve end-of-life care for patients and their caregivers.

Résultats

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Chercheurs, cliniciens-praticiens, décideurs, gestionnaires, patients-proches aidants, étudiants, résidents...

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