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Digital Solutions for GMF Patients to Assent to Contact for Research and Quality Improvement

Projet lauréat de l’appel à projets sur les dispositifs de pré-consentement.

Responsables

  • Jeannie Haggerty, McGill University
  • Marie-Ève Poitras, Université de Sherbrooke
  • Autres membres de l’équipe : Marie-Thérèse Lussier (UMontréal), Lucie Lambert (Patiente partenaire), Roland Grad (clinicien), Mark Karanofsky (clinicien)

Résumé

Conduct a rapid environmental scan of the structures and processes that have been implemented (successfully or not) in Quebec institutions to obtain and register patient general assent (assentiment large, métaconsentement, préconsentement) for:

  1. Direct contact by research teams to explore interest in participation in a project
  2. Secondary use of denominalized electronic clinical data for quality improvement or research questions that are approved by the clinic

Objectives :

  • To inventory the structures and processes that have been implemented (successfully or not?) to obtain and register patient general assent for research and secondary use of clinical data
  • To identify structures and processes that are relevant to the primary care context and deliberate with principal stakeholders (USSQ-SSA, R1Q, RRAPPL, DFM, others?) recommended directions with the greatest potential for successful across implementation university settings, and next steps.

Résultats

  • À venir.


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