Archives du mot-clé données

Sacred Knowledge: Protecting Indigenous Data Sovereignty

In an era where data is the new gold, the importance of protecting Indigenous data sovereignty has never been more critical. Join Marlyn Bennett, an Anishinaabe interdisciplinary researcher and Co-Lead of CHILD-BRIGHT’s Equity, Diversity, Inclusion, Indigenization and Decolonization (EDI-DI) Program on November 14 at 1 p.m. ET/10 a.m. PT as she delves into the profound significance of safeguarding Indigenous knowledge and data in health research.

This talk will explore the historical and cultural contexts that underscore the need for Indigenous control over data, the challenges faced in the fight for sovereignty, and the ways in which Indigenous communities are reclaiming their narratives through data governance.

Marlyn Bennett will share insights into the ethical considerations, best practices, and collaborative efforts essential for protecting sacred Indigenous knowledge. Attendees will gain a deeper understanding of the pivotal role that data sovereignty plays in empowering Indigenous communities, preserving cultural heritage, and ensuring that data is used in ways that respect Indigenous values and traditions.

This talk is a call to action for researchers, policymakers, and community members to support and advocate for Indigenous data sovereignty, recognizing it as a vital component of Indigenous rights and self-determination.



Accessing Data through DASH: CanPath & HDRN Canada Partnership

Are you a researcher seeking data from Canada’s largest population study – the Canadian Partnership for Tomorrow’s Health (CanPath)? HDRN Canada’s Data Access Support Hub (DASH) offers coordinated services to researchers interested in accessing administrative health data from more than one province or territory in Canada. Learn about the innovative partnership between CanPath and HDRN Canada, and discover how HDRN Canada can help you navigate the multi-regional data access process through DASH.

ABOUT THE SPEAKERS

Dr. Aline Talhouk is an Assistant Professor in the Department of Obstetrics and Gynecology in the Faculty of Medicine at the University of British Columbia. She is the principal investigator at OVCARE, BC’s ovarian and gynecological cancer research program, where she directs a data science and informatics laboratory. Dr. Talhouk has expertise in computational statistics and machine learning, specifically in developing and implementing predictive models in women’s health and oncology.

Carrie-Anne Whyte is HDRN Canada’s Program Lead with the Data Access Support Hub (DASH). She is based at the Canadian Institute for Health Information (CIHI) in Ottawa, where she has worked for the last decade. Carrie-Anne’s areas of focus include analysis, methodology and health data. Prior to her career at CIHI and HDRN Canada, Carrie-Anne held roles with the Public Health Agency of Canada and the Ottawa Hospital Research Institute. She holds a Master of Public Health from McGill University.

Dr. Jennifer Brooks joined CanPath as the Executive Director in 2023. She is an Associate Professor of Epidemiology at the Dalla Lana School of Public Health (DLSPH) at the University of Toronto. She completed her PhD in epidemiology at New York University and her post-doctoral fellowship at Memorial Sloan Kettering Cancer Center. Dr. Brooks is also the Acting Program Director for PhD students in Epidemiology at DLSPH and an Honorary Scientist at the Centre for Epidemiology and Biostatistics at the University of Melbourne, Australia.

Jodi Gatley is a Senior Project Manager in HDRN Canada’s the Partnerships and Stakeholder Engagement Portfolio. Jodi completed her MPH in Epidemiology at the Dalla School of Public Health at the University of Toronto. Jodi has worked in health research for over 10 years with clinical, academic and nonprofit organizations. Some areas of interest are facilitating multi-regional research, policy research and Indigenous health. Jodi is based at ICES in Toronto.



Données sur la main-d’œuvre de la santé au Canada: Comment optimiser son utilisation dans la recherche

Ce webinaire s’adresse aux chercheurs qui s’intéressent à l’effectif de la santé. Certains des principaux intendants des données dans ce secteur au pays et des représentants d’Effectif de la santé Canada feront découvrir aux participants toute la richesse des données à la disposition des chercheurs canadiens et des autres parties intéressées et leur montreront comment y accéder et les utiliser de façon optimale. Les présentateurs traiteront aussi de la confidentialité de ces données. Le but du webinaire est de créer un cadre d’échange interactif qui comblera le fossé entre la disponibilité des données et les besoins en matière de recherche, et encouragera la collaboration et l’innovation pour un milieu de recherche robuste et adaptable dans le domaine de l’effectif de la santé.

Plus précisément, les objectifs du webinaire sont les suivants :

  • Créer un cadre pour l’établissement et le renforcement des liens entre les chercheurs qui s’intéressent à l’effectif de la santé, les intendants des données dans ce secteur et Effectif de la santé Canada.
  • Faire connaître les fonds de données existants sur l’effectif de la santé, les façons d’y accéder et les questions de protection de la vie privée afin d’optimiser l’utilisation de ces données dans les recherches financées par les IRSC.