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Accessing Data through DASH

Are you a researcher seeking administrative health data from more than one province or territory in Canada? HDRN Canada’s Data Access Support Hub (DASH) offers coordinated services to researchers interested in accessing multi-regional datasets. Learn how DASH can help you navigate the data access process as well as the centralized services and tools available for researchers conducting research projects in more than one region, including:

  • the single data access request form for researchers to request data from multiple regions
  • support from experts at data centres across Canada
  • an inventory of all the datasets available via HDRN Canada and
  • an algorithm inventory to aid in analysis of the data.

ABOUT THE SPEAKERS:

Carrie-Anne Whyte is a Program Lead with HDRN Canada’s Data Access Support Hub (DASH). She is located at the Canadian Institute for Health Information (CIHI) in Ottawa, where she has worked for the last decade. Her areas of focus include analysis, methodology and health data. Prior to her career at CIHI and HDRN, Carrie-Anne held roles with the Public Health Agency of Canada and the Ottawa Hospital Research Institute. Carrie-Anne holds a Master of Public Health from McGill University.

Stefana Jovanovska is a Senior Research Project Manager on the Data and Analytic Services team at ICES. With a diverse professional background encompassing analytical chemistry, quality control and clinical research, she brings a wealth of expertise to her role. Stefana’s primary focus is supporting publicly funded research as well as multi-regional projects support in collaboration with HDRN Canada’s Data Access Support Hub (DASH) team.

PLEASE NOTE: This event will be recorded and posted on hdrn.ca. This webinar is presented in English.



CPCRN Learning Series: Making Wise Choices

Making Wise Choices: Community Engaged Data Governance lessons for Primary Care Research

25 June 2025 / 12 – 1 PM ET / Zoom

Session Description:
OKAKI is a Blackfoot word meaning Be Wise. OKAKI is also an Alberta based public health services and health informatics social enterprise that works with First Nations communities across Alberta. This session will explore lessons on healthcare data governance facilitating data sovereignty with Alberta First Nations communities, reflecting on principles of Ownership, Control, Access and Possession considering Blackfoot concepts of knowledge and decision making. The opportunity for
community-led primary health care implementation research will be discussed reflecting on OKAKI’s partnership with Alberta’s Network Environment for Indigenous Health Research, the Indigenous Primary Health Care and Policy Research (IPHCPR) Network.

Panelists:

Lindsay Crowshoe, MD
-Member of the Piikani First Nation
-Blackfoot Primary Care Physician and Researcher
-Associate Professor of Medicine and Assistant Dean Indigenous Health, University of Calgary, Cumming School of Medicine

Salim Samanani, MD
-Founder and Medical Director, OKAKI
-Adjunct Professor, School of Public Health, University of Alberta
-Adjunct Assistant Professor, Division of Medical Sciences, University of Victoria

Tyler White, MD
-Member of the Siksika First Nation
-Vice President of Indigenous Health, OKAKI
-Member, Board of Directors, OKAKI



Public Trust, Literacy & Health Data Foundations in Canada

It is critical for the public to have trust in governments and organizations that collect, protect, share and use health data. In this webinar, Julia Burt and Dr. Kim McGrail will provide an overview of a foundational paper developed by HDRN Canada, in collaboration with the Public Health Agency of Canada, on public trust and data literacy. This paper starts with principles outlined in the Pan-Canadian Health Data Charter, which puts people and populations at the centre of health data management. It then highlights the risks and benefits of data sharing and identifies other principles, all of which relate to public trust.

During the session, Julia and Dr. McGrail will highlight the engagement processes and methods used to develop the paper, and present its key findings, including the paper’s six recommendations for trustworthy data practices. These recommendations are intended to help different levels of government, health system organizations and others work together to earn trust in how health data are managed and used. They acknowledge that trust is earned based on what is done, how it is done, and how transparent and understandable government or organizational practices are.

About the Speakers

Julia Burt is HDRN Canada’s Public Engagement Operational Lead, working closely with the network’s Public Advisory Council to accelerate meaningful public engagement. She works with diverse members of the public on projects related to health data, including the co-creation of plain language about data, as well as exploring the public’s perception of acceptable uses and users of health data. Prior to her involvement with HDRN Canada, she was the Patient Engagement and Training and Capacity Lead with the Newfoundland and Labrador SPOR SUPPORT Unit.

Dr. Kim McGrail is a Professor in the School of Population and Public Health and Centre for Health Services Policy Research at the University of British Columbia. She is the Scientific Director of Population Data BC. Dr. McGrail’s research interests are quantitative policy evaluation and all aspects of population data science. She the 2009 -2010 Commonwealth Fund Harkness Associate in Health Care Policy and Practice, the 2016 recipient of the Cortlandt JG Mackenzie Prize for Excellence in Teaching, and the 2017 recipient of UBC’s Excellence in Clinical or Applied Research Award. She was part of the Expert Advisory Group for the pan-Canadian Health Data Strategy and is currently a member of the Global Partnership for AI as part of the Data Governance Working Group.



Séance de questions-réponses : Amélioration de l’accès aux soins primaires

Le 29 mai 2025, de 13 h à 14 h (HE)

Le nouveau programme Amélioration de l’accès aux soins primaires d’Excellence en santé Canada (ESC) aide les organismes offrant des soins primaires en équipe accroissent leur efficacité et optimisent le fonctionnement des équipes afin que leurs patientes et leurs patients reçoivent des soins dans des délais adaptés, quelle que soit l’urgence ou la demande.

S’inscrire à la séance de questions-réponses

Ne manquez pas notre séance d’information! Vous saurez tout sur les critères d’admissibilité, le financement, les échéanciers et les soutiens mis à votre disposition pour appuyer la réussite de vos initiatives. Que vous envisagiez différentes options ou soyez sur le point de déposer une demande, cette séance vous aidera à passer à l’étape suivante.

Ce nouveau programme vise à élargir l’accès aux soins et à atténuer la pression sur les services d’urgence. Comme d’autres initiatives, il s’inscrit dans le cadre de Cap Santé, un mouvement pancanadien réunissant des personnes qui partagent leurs connaissances et mettent en œuvre des approches éprouvées afin d’améliorer les soins et services de santé pour un plus grand nombre de personnes partout au pays.



Breaking Barriers: Distributed Analysis for Multi-regional Research

This rexclusive webinar introducing a groundbreaking methodological innovation designed to transform how researchers conduct multi-regional studies, on THURSDAY, JUNE 12 at 10:00 a.m. PT / 1:00 p.m. ET. Traditional data-sharing models often face roadblocks related to privacy and regulatory compliance. Distributed analysis offers a powerful alternative: enabling researchers to analyze data across multiple regions without physically pooling datasets.

In this session, you’ll learn:

  • How distributed analysis works and what makes it different from centralized approaches
  • Real-world examples where the method has unlocked new collaborative opportunities
  • Key benefits for privacy, scalability and regulatory compliance
  • Practical guidance on how to get started with the Data Access Support Hub (DASH) at HDRN Canada

Whether you’re conducting multi-regional public health research, managing clinical trials, or collaborating across institutions, this webinar will give you helpful tools to support you with your research.

Who should attend: Researchers, data scientists, epidemiologists, research administrators, and anyone involved in multi-regional research.



On Care: A Conversation with Dr. Victor Montori on Person-Centered Care and the Patient Revolution

Date et heure

15 janv. 2025 12:00 PM dans

Description

Join Dr. Victor M. Montori, renowned endocrinologist and health services researcher, for the inaugural webinar of PASSERELLE’s 2025 series. Dr. Montori will share insights into the future of care, focusing on evidence-based medicine, shared decision-making, and minimally disruptive practices. As a leader in the Patient Revolution, Dr. Montori advocates for careful, kind care for all. This event marks the beginning of a global learning journey showcasing the work of specialists in patient-oriented research and patient engagement. Don’t miss this opportunity to engage with one of the foremost voices in transforming healthcare. After the webinar, PASSERELLE fellows are invited to an exclusive Meet & Greet session with Dr. Montori from 1:00 PM to 1:30 PM for a more personal conversation. The webinar is open to all learners and hosted by PASSERELLE.


Chronic Health, Administrative Health Data & the 2S/LGBTQQIA+ Community

There are increasing opportunities to leverage administrative health data to better understand the experiences of communities who face inequities, including 2S/LGBTQQIA+ communities. But how do 2S/LGBTQQIA+ people feel about these kinds of health data and its linkage to community-based research? For community-based researchers, what can administrative health data tell us about how 2S/LGBTQQIA+ people “show up” in the data? In this session, Anu Radha Verma and Dr. Lachowsky will discuss the feasibility and acceptability of administrative health data linkage amongst 2S/LGBTQQIA+ communities, the possibility of understanding chronic diseases and their management in our communities, and possibilities for the future.

About the Speakers:

Anu Radha Verma (she/her) is an Associate Director of Research at the Community-Based Research Centre (CBRC). Her work at CBRC is focused on chronic health, conversion practices, anti-racism and gender-based violence. Anu Radha has lived and worked in both so-called Canada and India, and she focuses on social justice issues relating to the environment, health, gender and sexuality, poverty, youth, migration and disability. She is a queer, diasporic woman of colour with complex connections to ‘South Asia’, a mad-identified survivor, and she navigates chronic fatigue while living on the Treaty and Traditional Territory of the Mississauga’s of the Credit.

Dr. Nathan Lachowsky (he/him/his) is a settler researcher and uninvited guest on the traditional territory of the Lekwungen peoples. He is an Associate Professor in the School of Public Health and Social Policy at the University of Victoria, Canada, a Michael Smith Foundation for Health Research Scholar, and he serves as Research Director for CBRC. Championing interdisciplinary and community-based approaches, Dr. Lachowsky has conducted HIV and sexual health research with sexual and gender minoritized men, including Indigenous Two-Spirit and ethnoracial minority men across Canada and Aotearoa New Zealand.



Comprendre et surmonter les obstacles de la recherche en contexte de crise sécuritaire : exemples tirés du cas des pays du sahel

Un nombre sans cesse croissant de pays sont plongés dans une crise sécuritaire et politique sans précédent. Depuis plus de dix ans, c’est le cas des pays du Sahel. Ces pays sont confrontés à une polycrise, marquée par des déplacements massifs de populations et le choix difficile de certain.e.s de rester malgré les dangers. Selon de nombreux expert.e.s, cette crise est appelée à perdurer. Or, ses conséquences sont dévastatrices sur les systèmes de santé: la gouvernance et le financement des services de santé sont gravement perturbés, la disponibilité des professionnel.le.s, des médicaments et des vaccins est réduite, ainsi que la qualité des infrastructures et des données sanitaires. L’accès et la qualité aux soins sont dramatiquement affectés, laissant place à l’émergence et la réémergence de maladies autrefois maîtrisées.



Soutenir la transition et l’intégration des infirmières nouvellement diplômées par un programme de résidence en soins infirmiers : revue des écrits et perspectives d’avenir

Événement du RRISIQ•26 novembre 2024 12:00:00 – 13:00:00

Résumé de l’activité

À l’international, jusqu’à 33% des infirmières de la relève quittent leur emploi ou la profession moins de deux ans après leur diplomation. Des émotions négatives tributaires à un manque de soutien sont souvent la cause, donnant lieu à un choc de transition. L’expérience d’infirmières nouvellement diplômées au Québec et au Canada ne fait pas exception. La majorité des établissements de santé offre un programme de transition pour soutenir l’intégration des ces infirmières à leur nouvel environnement de travail. Ces programmes varient considérablement en durée, allant de quelques jours à plus de 12 mois. Ces programmes plus long offrent habituellement une structure plus complète de soutien et peuvent prendre le nom de programme de résidence en soins infirmiers (PRSI). À ce jour, peu d’établissements canadiens ont implanté un PRSI, qui a pourtant des retombées positives sur les compétences, la satisfaction et la rétention de la relève infirmière.

Lors de cette conférence, la structure des PRSI sera présentée ainsi que les recommandations provenant de la littérature concernant les éléments clés à mettre en place pour assurer leur pérennité. Des expériences et études québécoises seront discutées pour mettre en lumière les principaux enjeux liés à l’implantation de ces programmes qui ont le potentiel d’offrir le soutien optimal aux IND pour réussir leur intégration et leur transition professionnelle et ainsi favoriser la rétention de la relève infirmière dans les milieux cliniques.



Sacred Knowledge: Protecting Indigenous Data Sovereignty

In an era where data is the new gold, the importance of protecting Indigenous data sovereignty has never been more critical. Join Marlyn Bennett, an Anishinaabe interdisciplinary researcher and Co-Lead of CHILD-BRIGHT’s Equity, Diversity, Inclusion, Indigenization and Decolonization (EDI-DI) Program on November 14 at 1 p.m. ET/10 a.m. PT as she delves into the profound significance of safeguarding Indigenous knowledge and data in health research.

This talk will explore the historical and cultural contexts that underscore the need for Indigenous control over data, the challenges faced in the fight for sovereignty, and the ways in which Indigenous communities are reclaiming their narratives through data governance.

Marlyn Bennett will share insights into the ethical considerations, best practices, and collaborative efforts essential for protecting sacred Indigenous knowledge. Attendees will gain a deeper understanding of the pivotal role that data sovereignty plays in empowering Indigenous communities, preserving cultural heritage, and ensuring that data is used in ways that respect Indigenous values and traditions.

This talk is a call to action for researchers, policymakers, and community members to support and advocate for Indigenous data sovereignty, recognizing it as a vital component of Indigenous rights and self-determination.