Archives du mot-clé Indigenous data sovereignty

CPCRN Learning Series: Making Wise Choices

Making Wise Choices: Community Engaged Data Governance lessons for Primary Care Research

25 June 2025 / 12 – 1 PM ET / Zoom

Session Description:
OKAKI is a Blackfoot word meaning Be Wise. OKAKI is also an Alberta based public health services and health informatics social enterprise that works with First Nations communities across Alberta. This session will explore lessons on healthcare data governance facilitating data sovereignty with Alberta First Nations communities, reflecting on principles of Ownership, Control, Access and Possession considering Blackfoot concepts of knowledge and decision making. The opportunity for
community-led primary health care implementation research will be discussed reflecting on OKAKI’s partnership with Alberta’s Network Environment for Indigenous Health Research, the Indigenous Primary Health Care and Policy Research (IPHCPR) Network.

Panelists:

Lindsay Crowshoe, MD
-Member of the Piikani First Nation
-Blackfoot Primary Care Physician and Researcher
-Associate Professor of Medicine and Assistant Dean Indigenous Health, University of Calgary, Cumming School of Medicine

Salim Samanani, MD
-Founder and Medical Director, OKAKI
-Adjunct Professor, School of Public Health, University of Alberta
-Adjunct Assistant Professor, Division of Medical Sciences, University of Victoria

Tyler White, MD
-Member of the Siksika First Nation
-Vice President of Indigenous Health, OKAKI
-Member, Board of Directors, OKAKI



Sacred Knowledge: Protecting Indigenous Data Sovereignty

In an era where data is the new gold, the importance of protecting Indigenous data sovereignty has never been more critical. Join Marlyn Bennett, an Anishinaabe interdisciplinary researcher and Co-Lead of CHILD-BRIGHT’s Equity, Diversity, Inclusion, Indigenization and Decolonization (EDI-DI) Program on November 14 at 1 p.m. ET/10 a.m. PT as she delves into the profound significance of safeguarding Indigenous knowledge and data in health research.

This talk will explore the historical and cultural contexts that underscore the need for Indigenous control over data, the challenges faced in the fight for sovereignty, and the ways in which Indigenous communities are reclaiming their narratives through data governance.

Marlyn Bennett will share insights into the ethical considerations, best practices, and collaborative efforts essential for protecting sacred Indigenous knowledge. Attendees will gain a deeper understanding of the pivotal role that data sovereignty plays in empowering Indigenous communities, preserving cultural heritage, and ensuring that data is used in ways that respect Indigenous values and traditions.

This talk is a call to action for researchers, policymakers, and community members to support and advocate for Indigenous data sovereignty, recognizing it as a vital component of Indigenous rights and self-determination.